Why Does My Brain Hate Me?
(Click here if you’re interested in helping my brain hate me less.)
I wish I knew…
I suffer from a constant refractory migraine (Status Migrainosus). I am also autistic and have comorbid chronic depression, anxiety, and PTSD. Stuff’s pretty weird these days. I self-diagnosed Asperger’s Syndrome on April 4th, 2013. I was officially diagnosed by a Psychologist on May 8th, 2013 as an adult living with Asperger’s Syndrome.
On August 7th, 2012, my head started hurting and it hasn’t truly stopped since. I’ve had a few pain-free days after treatments that required hospitalizations, but the pain comes back, and comes back with a vengeance. My neurologists call this a refractory migraine, or Status Migrainosus, or an intractable migraine. I call it my Monster Migraine, and it’s done things like ending my career in Corporate America, causing me to lose friendships, and drastically changing the way I and my family live our lives.
I started this blog to document my medical misadventures. As I’ve met more and more people with stories about their own rogue (be it physically or psychologically) brains , I realized that I could do more than just keep a diary. When everything started to go so very wrong in my life, I turned to the internet for answers. There weren’t many answers to be found, and what little information there was… wasn’t helpful or hopeful. Sharing my experiences with treatments, medications, medical professionals, depression, meltdowns, suicidal thoughts, therapy, self-care and coping is a way that I can give back to the people who have shared with me and made me feel less alone. If I can help someone find a treatment that ends or reduces their pain, it brightens my day.
Other than all of that, I’m just a married gal with a teen-aged son and a ridiculous dog. I write, I play the ukulele. I am making the most of not-working by plodding slowly through school and creative projects. Distraction is my best friend, and I never met an ice pack I didn’t like.
Thank you for visiting my little corner of the internet, as dark and hopeless as it may sometimes seem… I try to stay positive.
I hope you’re having a good day, and if you’re not… there is always tomorrow… or next week… next month… or next year.