The Girl Around The Brain

Why Does My Brain Hate Me?

(Click here if you’re interested in helping my brain hate me less.)

I wish I knew…

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I suffer from a constant refractory migraine (Status Migrainosus). I am also autistic and have comorbid chronic depression, anxiety, and PTSD. Stuff’s pretty weird these days.  I self-diagnosed  Asperger’s Syndrome on April 4th, 2013. I was officially diagnosed by a Psychologist on May 8th, 2013 as an adult living with Asperger’s Syndrome. 

On August 7th, 2012, my head started hurting and it hasn’t truly stopped since. I’ve had a few pain-free days after treatments that required hospitalizations, but the pain comes back, and comes back with a vengeance. My neurologists call this a refractory migraine, or Status Migrainosus, or an intractable migraine. I call it my Monster Migraine, and it’s done things like ending my career in Corporate America, causing me to lose friendships, and drastically changing the way I and my family live our lives.

I started this blog to document my medical misadventures. As I’ve met more and more people with stories about their own rogue (be it physically or psychologically) brains , I realized that I could do more than just keep a diary. When everything started to go so very wrong in my life, I turned to the internet for answers. There weren’t many answers to be found, and what little information there was… wasn’t helpful or hopeful. Sharing my experiences with treatments, medications, medical professionals, depression, meltdowns, suicidal thoughts, therapy, self-care and coping is a way that I can give back to the people who have shared with me and made me feel less alone. If I can help someone find a treatment that ends or reduces their pain, it brightens my day.

Other than all of that, I’m just a married gal with a teen-aged son and a ridiculous dog. I write, I play the ukulele. I am making the most of not-working by plodding slowly through school and creative projects. Distraction is my best friend, and I never met an ice pack I didn’t like.

Thank you for visiting my little corner of the internet, as dark and hopeless as it may sometimes seem… I try to stay positive.

I hope you’re having a good day, and if you’re not… there is always tomorrow… or next week… next month… or next year.

Contact Me

Twitter: @MyBrainHatesMe

Facebook: MyBrainHatesMe

Tumblr: @BrainHatesMe

E-mail: brainhatesme@gmail.com

7 thoughts on “The Girl Around The Brain

  1. Hi, there!! I first wanted to say how amazing it is that you are sharing your story and your journey through your blog! =) I believe by getting the word out on such diagnoses that people are less scared of them and become more aware of them.

    Like

    • Thank you so much!

      I absolutely agree. When I was first typing “migraine that won’t go away” into Google, I was getting horror stories in return… and I think it’s really important to show people that it’s not all a nightmare… and that you can be a human being.

      Liked by 1 person

  2. Hi there,
    many thanks for the follow on http://www.postsofhypnoticsuggestion.wordpress.com, it’s much appreciated. My brother was recently diagnosed with Aspergers as well. He’s found it immensely helpful, explaining so much that had not seemed right for him.
    Wishing you all the best
    Tony

    PS I’m also on twitter, so if you feel like following me there as well, you’d be most welcome (http://www.twitter.com/tbtalks), and on https://www.facebook.com/PostsOfHypnoticSuggestion in case you fancy ‘liking’ the page

    Like

  3. Hello! I am a 17 year old girl recently diagnosed with Aspergers. Like you, I have started my own blog(Clockwork Minds) to discuss my own experiences with living with Aspergers Syndrome and as im extremely shy and find it difficult to verbally express myself, I thought starting a blog would be a good idea. Ive read a few of your posts and have seen that youve also read Aspergirls! I was also shocked by how much my personality fit with the book, it was like it had been written about me 😛 Please check out my blog if youre interested 🙂

    Like

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